We're so glad you've found your way here. This website has been a labour of love, and we're proud to finally share it with you.

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Setting up this charity in Tom's memory was never something we imagined we'd be doing, but from the moment we decided to go ahead, we knew we wanted a website that felt like us — warm, honest, and focused entirely on what matters most: raising money for the research that could change the outcome for the next family facing EBV-HLH.

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We were lucky enough to work with Wiggle Creative to bring this site to life. They took the time to understand what this charity means to us, and helped us find a design and a voice that felt right — never clinical, never distant, just a family doing everything we can for Tom.

Here's what you'll find as you explore:

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Research — the two teams we're funding: Prof. Claire Shannon-Lowe's team at the University of Birmingham, and Drs Jessica Manson and Rachel Tattersall's programme at The University College London.

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Support — a space for families who, like ours, have lost someone to EBV-HLH.

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Funds raised — a running record of everything raised so far, including Joe's incredible Ironman Texas challenge.

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About — Tom's story, and ours.

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Donate now — however much you're able to give, it goes straight to research that matters.

Thank you for being here. And thank you from all of us.