Privacy Policy

Last updated: 7th July 2026

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The Tom Towler EBV-HLH Charity ("we," "us," "our") is committed to protecting your privacy. This policy explains what information we collect, how we use it, and your rights regarding your personal data, in line with the UK General Data Protection Regulation (UK GDPR) and the Data Protection Act 2018.

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Who we are

The Tom Towler EBV-HLH Charity is a registered charity in England and Wales, registered charity number 1218180. If you have any questions about this policy or how we handle your data, you can contact us at tomtowlerebvhlh@gmail.com.

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What information we collect

We may collect the following information when you interact with this website:

• Contact details you provide, such as your name and email address, when you get in touch, sign up for updates, or express interest in fundraising
• Donation information, including your name, email address, and payment details, processed securely via Donately or bank transfer.
• Gift Aid information, if you choose to add Gift Aid to your donation, including your name, address, and taxpayer status
• Technical information such as your IP address, browser type, and how you use our site, collected automatically via cookies and analytics tools

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How we use your information

We use your information to:

• Process and acknowledge donations, including claiming Gift Aid where applicable
• Respond to enquiries and fundraising expressions of interest
• Send updates about the charity, its research funding, and fundraising activities, where you've agreed to hear from us
• Understand how our website is used, so we can improve it
• Meet our legal and regulatory obligations as a registered charity

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Legal basis for processing

We process your data on the basis of consent (for marketing communications and Gift Aid), contract (to process donations), and legitimate interest (to run and improve this charity and website).

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Sharing your information

We do not sell your data. We may share information with trusted third parties who help us operate, including:

• Our payment/donation processor, Donately
• HMRC, where required for Gift Aid claims
• Our website hosting and analytics providers

We only share what's necessary for these services to function, and we require all third parties to handle your data securely.

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Cookies

This website uses cookies to help it function and to understand how visitors use the site. You can control or disable cookies through your browser settings.

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How long we keep your information

We keep your information for as long as necessary to fulfil the purposes outlined in this policy, including any legal, accounting, or reporting requirements — for example, Gift Aid records are typically retained for a minimum of 6 years in line with HMRC requirements.

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Your rights

Under UK data protection law, you have the right to:

• Access the personal data we hold about you
• Ask us to correct or delete it
• Object to or restrict certain processing
• Withdraw consent at any time (for example, to stop receiving updates from us)
• Complain to the Information Commissioner's Office (ICO) if you have concerns about how we handle your data

To exercise any of these rights, please contact us at tomtowlerebvhlh@gmail.com.

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Changes to this policy

We may update this policy from time to time. Any changes will be posted on this page with an updated revision date.

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Contact us

If you have any questions about this policy or your data, please contact us through our Get in touch page.